Collaboration. Transparency. Urgency.
CURE SYNGAP1 is a global group of families committed to accelerating the science to cure SYNGAP1 & to supporting each other.
Learn more about SYNGAP1Join us in Denver for the 2026 CURE SYNGAP1 Conference
REGISTRATION IS NOW OPEN!!!Ā cureSYNGAP1.org/Reg26
Read the 2025 CURE SYNGAP1 Impact Report at cureSYNGAP1.org/Impact25
Newly Diagnosed? Click here!
Upcoming Events & Webinars
November 14th, 2026
November 28th, 2026 - November 29th, 2026
December 3rd, 2026 - December 4th, 2026
April 24th, 2027
June 21st, 2027
Newly Diagnosed?
Join our registry
Register with Citizen Health to collect as much de-identified group data for researchers to use. We need as many to register to improve the chances for successful clinical trials.
RegisterGet involved
The best way to help someone with SYNGAP1 is to help spread awareness and stay informed. Start by connecting with CURE SYNGAP1, holding a fundraiser, and becoming a volunteer.
ConnectNew families
If you're newly diagnosed or looking for the SYNGAP1 community, we have developed a Resource Guide with basic information as well as important tools for you and your doctor.
Learn more