Collaboration. Transparency. Urgency.

SynGAP Research Fund (SRF) is a global group of families committed to accelerating the science to cure SYNGAP1 & to supporting each other.

Learn more about SYNGAP1

Newly Diagnosed?

Join our registry

Register with Ciitizen to collect as much de-identified group data for researchers to use. We need as many to register to improve the chances for successful clinical trials.

Register

Get involved

The best way to help someone with SYNGAP1 is to help spread awareness and stay informed. Start by connecting with SRF, holding a fundraiser, and becoming a volunteer.

Connect

New families

If you're new to SYNGAP1 or SRF, we have developed a 'Welcome Pack' with basic information, resources, as well as important tools for you and your doctor.

Learn more

Upcoming Events

View all events

$4.45M

Funds committed

1297

Patients counted

139

Families volunteering

214

US Families on our Ciitizen NHS

35

Companies & institutes working for SYNGAP1

196

Patients profiled