Collaboration. Transparency. Urgency.

SynGAP Research Fund (SRF) is a global group of families committed to accelerating the science to cure SYNGAP1 & to supporting each other.

Learn more about SYNGAP1

June is Syngap Awareness Month! June 21 is Syngap Awareness Day aka Splash4Syngap!
Check out Syngap.Fund/Splash24 for how you can hep spread awareness all month long!

Newly Diagnosed?

Join our registry

Register with Ciitizen to collect as much de-identified group data for researchers to use. We need as many to register to improve the chances for successful clinical trials.

Register

Get involved

The best way to help someone with SYNGAP1 is to help spread awareness and stay informed. Start by connecting with SRF, holding a fundraiser, and becoming a volunteer.

Connect

New families

If you're new to SYNGAP1 or SRF, we have developed a Resource Guide with basic information as well as important tools for you and your doctor.

Learn more

$5.75M

Funds committed

1,400

Patients counted

164

Volunteers

228

US Families on our Ciitizen NHS

35

Companies & institutes working for SYNGAP1

200

Patients profiled