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SYNGAP1 CENSUS 2026 Update: +65 in Q3 – Total = 1,871
Night of Impact: One Room, One Goal – CURE SYNGAP1
TAKE ACTION: Six Ways U.S. Families Can Help Advance SYNGAP1 Research
SYNGAP1 CENSUS 2026 Update: +45 in Q2 – Total = 1,806
Team CURE SYNGAP1 Rides Again – U Penn’s Million Dollar Bike Ride (MDBR) | June 13, 2026
Phoebe’s Fight – How SYNGAP1 Affects the Life of a Child
Dr. Helen Willsey and Dr. David Kastner to Investigate SYNGAP1’s Role in Cilia Function and Behavior with support from CURE SYNGAP1 – PR50
Funding for “Validating Remote Developmental Assessments in SYNGAP1-Related Disorders” grant awarded to co-PIs Julie Orlando DPT, PhD of Center for Epilepsy and Neurodevelopmental Disorders at U Penn and Dr. Jill McKee of Children’s Hospital of Philadelphia (CHOP) from CURE SYNGAP1 – PR49
Global SYNGAP1 Organizations Form CURE SYNGAP1 COLLECTIVE (CSC) to Accelerate Treatments and Ensure Patient Access through Coordinated Global Action – PR48
When Inclusion Fails
Cuando la inclusión falla
CURE SYNGAP1, fka SynGAP Research Fund (SRF), Announces the Release of Their 2025 Impact Report – Unlock Their Tomorrow – PR47
CURE SYNGAP1 Announces $111,960 Investment in RARE-X Partnership to Advance ProMMIS Patient-Reported Outcome Measure Data Collection – PR46
Sprint4Syngap 2026 – 6th Annual Fundraiser Sets Record With Over $300,000 Raised for CURE SYNGAP1!
Crafts for a Cure – a CURE SYNGAP1 Fundraiser in Honor of Naya
CURE SYNGAP1 Announces 2026 Board of Trustees Transition – PR45
“Can we help?” One SYNGAP1 Mom’s thoughts and experiences when handling your child’s public meltdown
SYNGAP1 CENSUS 2026 Update: +54 in Q1 – Total = 1,761
