CURE SYNGAP1’s sixth annual cornerstone fundraiser, Sprint4Syngap, set a new benchmark for community impact, marking a spectacular start to the year. The April 2026 festivities saw an incredible outpouring of support, with the collective effort raising almost $310,000. This landmark achievement not only highlights the growing dedication of our supporters but also shatters last year’s record by almost $45,000. And, since a few teams recently concluded their events, we’re still tallying the totals!
Team Myla Leads Again!
The Tavilla Family and Myla broke their own personal record after raising more than $172,000 this year – that’s a grand total of over $655,000 raised by this one team over the past four years!! The consistency and dedication this amazing family has demonstrated over the years is truly inspirational! Five other teams added over $90,000, including Phoebe’s Fight ($46,925), Team Kiera and Trajan ($12,927), Team Andrew ($11,319), Team Daisy ($10,738), and Team Erin ($10,310). Eighteen other teams raised the balance. Every dollar raised is important. Each team is pivotal. Each donation is vital!
What makes this year’s milestone truly special is the diverse and creative spirit of the teams involved. From coast to coast, participants across the United States joined forces in ways that felt most meaningful to them. The beauty of this campaign lies in its inherent flexibility; it is designed to empower every team to fundraise in a manner that fits their own style and comfort level. This year, we saw that versatility in action through a vibrant mix of traditional picnics, formal ticketed races, and innovative virtual events (even an auction!) that bridged the distance between friends and family.
No matter the format, the element each had in common was the purpose: to spread awareness, acceptance, and raise funds to find a cure for SYNGAP1-Related Disorders.
April 24, 2027 – SAVE THE DATE FOR SPRINT4SYNGAP 2027!
As we celebrate this year’s historic success, we invite everyone to ride the momentum of 2026 and raise the bar even higher next year. Whether you prefer a small, intimate get-together or a large-scale public gathering, there is a place for you in this community-wide tradition. By participating, you are not just raising funds—you are joining an international movement of people dedicated to making a tangible difference. With almost 500 known families in the US, not to mention almost 2,000 worldwide, the 25 teams participating in 2025 represent just a small fraction of our community. Imagine the results we could achieve together if 50 teams signed up!! (Dare we dream of 100 teams?)
2026 Rifton Bike Giveaway Winner
Your Sprint4Syngap Experience Simplified
For those of you concerned that holding an event is too much work for you, we’ll help every step of the way with…
- Expert Strategy: Use our resource guide and past webinars and podcasts.
- Digital Launchpad: Not tech savvy? Let us build your event website.
- Brand Presence: We can get you banners, stickers, and swag to make your function memorable.
- Dedicated Support: Personal advice is provided every step of the way.
Sprint is all about community – from your local neighborhood to the families living with SYNGAP1 across the globe. Letting your neighbors know who we are and introducing your loved ones to them is key to our pathway to a cure. Considering teaming up with another SYNGAP1 family would allow you to share the preparation while generating more donations.
Can We Count on You in 2027?
Your family has the unique power to turn hope into action by hosting an event that fuels the research needed to transform your child’s future. Whether you create a Sprint team for 2027 or organize a different fundraiser this year, please become involved and help accelerate research, support, and upcoming clinical trials.
Though this year’s Sprint is over, we’re still raising funds 24/7/365. Become a Champion of Hope at cureSYNGAP1.org/Donate and help us keep this year’s race for a cure moving forward.
