Julie Miles is the Scramble for Syngap Chair and has been volunteering with SRF since 2021. She most recently joined the Board of Directors in 2023. Julie lives in South Carolina with her husband and three children, including 8-year-old Syngapian, Miller.
The second annual Scramble for Syngap was recently held in Travelers Rest, SC. The event was a huge success for the Upstate South Carolina SYNGAP community and the team did an excellent job spreading awareness of our rare disease. At the registration tent, the golfers enjoyed the opportunity to speak with SYNGAP1 parents, learn about the cause, and squeeze in some practice swings!
Prior to the shotgun start, I had the amazing opportunity to share a small bit about our son and his SYNGAP1 journey. More importantly, I was able to share who and what our golfers were supporting.
Each time I speak about our family’s journey, I tend to get a little weepy. It has been a very emotional experience, and I believe that it is important for our supporters to see and feel the raw emotion that is attached to raising a child with such a rare disorder.
After announcements by our Golf Pro, the teams were on their way! Each player was treated to a catered box lunch from the on-site restaurant, Core450, which is always such a hit! Our teams enjoyed an amazing day of golf filled with surprises along the way as well as many challenging contests.
The most difficult hole on the course held one of the surprises, the opportunity to buy your score! For $100, the majority of our teams were able to buy a Hole in One, which gave them a 1 on their scorecards! This was so exciting for our golfers and something that we will most definitely offer again in the future! After a full day of golf, the teams met us back at Core450 for our awards ceremony. We gave prizes for multiple contests as well as 1st and 2nd place winners. In addition, there was a giveaway for a 2023 Totem Atlas electric bike.
We are so thankful for the incredible amount of support from our generous sponsors, donors, volunteers, Cherokee Valley Course and Club, Core450, SynGAP Research Fund, and community! The event netted $17,000 to support SYNGAP1 research, and we could not be more proud of that number! We look forward to hosting our 3rd annual event in 2024 and hope to see you there!