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Tag: Family
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Syngap Awareness Day, 2027 – Splash for Syngap!
Sprint For Syngap 2027
“Can we help?” One SYNGAP1 Mom’s thoughts and experiences when handling your child’s public meltdown
Complete the ProMMiS SYNGAP1 Natural History Study by Filling out RARE-X Surveys
Webinar #121 – CURE SYNGAP1 Conference 2025 Family Day Presentations
Rare Disease Day 2026: CURE SYNGAP1
CURE SYNGAP1 Conference 2026 in Denver
Webinar #62 – Los hermanos y hermanas: piezas clave en la familia
Webinar #65 – Perros de Servicios para SYNGAP1
Webinar #67 – More of Everything: One mom’s journey parenting her son with SYNGAP1-related Intellectual Disability
Webinar #103 – CURE SYNGAP1 Conference 2024 Family Day Presentations
Webinar #119 – CURE SYNGAP1 Conference 2025 Virtual Family Day
SYNGAP1 CONFERENCE 2022: Charting our rare disease treatment path
SYNGAP1 CONFERENCE 2023, hosted by SRF
Sprint4Syngap 2021
Sprint4Syngap 2022
Sprint4Syngap 2023
Sprint4Syngap 2024
