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Webinar #130 – Family Meeting with CAMP4 Therapeutics (In Person or Virtual)
Webinar #129 – Identificación y manejo inicial de las crisis epilépticas
Syngap Awareness Day, 2027 – Splash for Syngap!
Webinar #128 – Una boca sana para una mejor calidad de vida: guía práctica para familias y cuidadores
Webinar #127 – Diferentes crisis epilépticas en SYNGAP1
SYNGAP1 CENSUS 2026 Update: +45 in Q2 – Total = 1,806
SYNGAP1 UK – 2026 Family Conference
Global SYNGAP1 Organizations Form CURE SYNGAP1 COLLECTIVE (CSC) to Accelerate Treatments and Ensure Patient Access through Coordinated Global Action – PR48
When Inclusion Fails
Sprint For Syngap 2027
Corriendo por SYNGAP1 – 2026
SYNGAP1 CENSUS 2026 Update: +54 in Q1 – Total = 1,761
Cuatro historias, un mismo propósito: Nuestras Visitas a CHOP
Rare Disease Day 2026: CURE SYNGAP1
I Simposio de la Alianza por las Enfermedades Huérfanas y Defectos Congénitos y XII Simposio de Enfermedades Asociadas a Procesos Genéticos
Dr. Paul Donlin-Asp of the University of Edinburgh to dissect the molecular functions and regulation of local SYNGAP1 protein synthesis with support from CURE SYNGAP1 (fka SynGAP Research Fund) – PR42
Dr. Àlex Bayés Puig Advances SYNGAP1 Research with New SynGAP Biomarker Study Funded by CURE SYNGAP1 – PR41
First SYNGAP1 Family From Poland Goes To CHOP!
