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Tag: Patient Stories
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When Inclusion Fails
Cuando la inclusión falla
Webinar #121 – CURE SYNGAP1 Conference 2025 Family Day Presentations
LO QUE SYNGAP1 NO NOS PUDO QUITAR
WHAT SYNGAP1 COULDN’T TAKE AWAY FROM US
Night of Impact – 2026
How Genetic Testing Helped One Mom Turn a Gut Feeling into a Diagnosis for Her Child
Climbing Together: Hope, Community, and Momentum at the CURE SYNGAP1 Conference 2025
CURE SYNGAP1 Conference 2025 – Family Day Feels Like Home
Webinar #26 – Your teenager was just diagnosed with SYNGAP1, processing through a new lens
Webinar #52 – SYNGAP1 Service Dogs
Webinar #53 – Severe Behaviors and Advocacy
Webinar #62 – Los hermanos y hermanas: piezas clave en la familia
Webinar #67 – More of Everything: One mom’s journey parenting her son with SYNGAP1-related Intellectual Disability
Webinar #103 – CURE SYNGAP1 Conference 2024 Family Day Presentations
Webinar #119 – CURE SYNGAP1 Conference 2025 Virtual Family Day
Epilepsy Awareness Month: Isaac’s SYNGAP1 Story
Autism Is Not My Daughter (Nor Her Gift)