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Living with Epilepsy Conference
Houston Epilepsy Educational Conference – 2026
Unlock Their Tomorrow – 2026
Pickleball for a Cure – 2027
Night of Impact: One Room, One Goal – CURE SYNGAP1
TAKE ACTION: Six Ways U.S. Families Can Help Advance SYNGAP1 Research
Syngap Awareness Day, 2027 – Splash for Syngap!
Webinar #126 – How Citizen Health and Ari Can Support SYNGAP1 Families
SHOOT FOR SYNGAP1
Fight For Felipe 2026
Team CURE SYNGAP1 Rides Again – U Penn’s Million Dollar Bike Ride (MDBR) | June 13, 2026
Dr. Helen Willsey and Dr. David Kastner to Investigate SYNGAP1’s Role in Cilia Function and Behavior with support from CURE SYNGAP1 – PR50
National Plan for the Epilepsies – Stakeholder Update 2026
Funding for “Validating Remote Developmental Assessments in SYNGAP1-Related Disorders” grant awarded to co-PIs Julie Orlando DPT, PhD of Center for Epilepsy and Neurodevelopmental Disorders at U Penn and Dr. Jill McKee of Children’s Hospital of Philadelphia (CHOP) from CURE SYNGAP1 – PR49
Sprint For Syngap 2027
CURE SYNGAP1, fka SynGAP Research Fund (SRF), Announces the Release of Their 2025 Impact Report – Unlock Their Tomorrow – PR47
CURE SYNGAP1 Announces $111,960 Investment in RARE-X Partnership to Advance ProMMIS Patient-Reported Outcome Measure Data Collection – PR46
Sprint4Syngap 2026 – 6th Annual Fundraiser Sets Record With Over $300,000 Raised for CURE SYNGAP1!
