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External Webinar – Haystack Project White Paper Launch

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July 22, 2025 @ 1:00 pm – 2:00 pm EDT

According to https://haystackproject.org/, “The Haystack Project is a non-profit enabling rare and ultra-rare disease patient advocacy organizations to highlight and address systemic obstacles to patient access. Our core mission is to evolve health care payment and delivery systems to make innovative, quality treatments accessible to the patients they were meant to reach.”

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