Events Calendar
See something missing? Fill out this form to add your event.
Events
-
-
-
-
SHOOT FOR SYNGAP1
Purgatory Clay Sports 1374 S Nelson Whitmire Way, Hurricane, Utah, United StatesAIMING FOR A CURE - SHOOTING FOR HOPE Join us for a day of sporting clays, community, and purpose as...
-
Fight For Felipe 2026
Irish Social Club of Boston 119 Park Street, West Roxbury, Massachusetts, United StatesJoin us on November 28th for a festive evening of food, music, and fellowship. All proceeds from this event will...
-
-
CURE SYNGAP1 Conference 2026 in Denver
Featured CURE SYNGAP1 ConferenceGrand Hyatt Denver 1750 Welton Street, Denver, Colorado, United States +1 moreREGISTRATION IS NOW OPEN! Event begins in... RESERVE YOUR ROOM TODAY - ONLY $159/NIGHT!! Join Us for the Friday Family...
-
2026 RARE RECEPTION
Grand Hyatt Denver 1750 Welton Street, Denver, Colorado, United StatesCome to the 2026 Rare Reception!Who: Patient Advocacy Groups, Physicians, Scientists, and Industry PartnersWhere: Grand Hyatt Denver | Denver, COWhen:...
-
How to Get Involved with EveryLife – Virtual Information Sessions
Join the EveryLife Foundation for Rare Diseases for their virtual session, “How to Get Involved”. Every other month, typically on...
-
-
Pickleball for a Cure – 2027
Details and Event Page Coming Soon!
-
How to Get Involved with EveryLife – Virtual Information Sessions
Join the EveryLife Foundation for Rare Diseases for their virtual session, “How to Get Involved”. Every other month, typically on...
-
-
How to Get Involved with EveryLife – Virtual Information Sessions
Join the EveryLife Foundation for Rare Diseases for their virtual session, “How to Get Involved”. Every other month, typically on...
-
Sprint For Syngap 2027
Featured Sprint4SyngapSprint For Syngap is CURE SYNGAP1’s annual 5k to increase awareness of SYNGAP1 in our communities by giving families an...
-
-
How to Get Involved with EveryLife – Virtual Information Sessions
Join the EveryLife Foundation for Rare Diseases for their virtual session, “How to Get Involved”. Every other month, typically on...
-
Syngap Awareness Day, 2027 – Splash for Syngap!
On June 21, We Encourage You to Raise Awareness for SYNGAP1! What is the significance of June 21?The genetic address...
-
-
How to Get Involved with EveryLife – Virtual Information Sessions
Join the EveryLife Foundation for Rare Diseases for their virtual session, “How to Get Involved”. Every other month, typically on...
-
-
How to Get Involved with EveryLife – Virtual Information Sessions
Join the EveryLife Foundation for Rare Diseases for their virtual session, “How to Get Involved”. Every other month, typically on...
-
-
How to Get Involved with EveryLife – Virtual Information Sessions
Join the EveryLife Foundation for Rare Diseases for their virtual session, “How to Get Involved”. Every other month, typically on...
-
-
How to Get Involved with EveryLife – Virtual Information Sessions
Join the EveryLife Foundation for Rare Diseases for their virtual session, “How to Get Involved”. Every other month, typically on...
-
-
How to Get Involved with EveryLife – Virtual Information Sessions
Join the EveryLife Foundation for Rare Diseases for their virtual session, “How to Get Involved”. Every other month, typically on...
-
-
How to Get Involved with EveryLife – Virtual Information Sessions
Join the EveryLife Foundation for Rare Diseases for their virtual session, “How to Get Involved”. Every other month, typically on...
-
-
How to Get Involved with EveryLife – Virtual Information Sessions
Join the EveryLife Foundation for Rare Diseases for their virtual session, “How to Get Involved”. Every other month, typically on...
-
-
How to Get Involved with EveryLife – Virtual Information Sessions
Join the EveryLife Foundation for Rare Diseases for their virtual session, “How to Get Involved”. Every other month, typically on...