June 21, 2027 All day

On June 21, We Encourage You to Raise Awareness for SYNGAP1!

What is the significance of June 21?
The genetic address of Syngap is 6p21.32, so we celebrate Syngap Awareness Day around the globe on 6.21 or June 21st and treat June as Syngap Awareness Month.

Splash4Syngap? What’s that all about?
Almost all of our kids love water, so it’s natural to center our annual theme around pools, sprinklers, lakes – wherever they are happiest!

Why do we need to make others aware?
Before our families received their diagnosis, it’s likely that none of us had heard of SYNGAP1-Related Disorders. As soon as each of us got that call, our focus shifted quickly to finding a cure for our kids. Spreading awareness generates interest in helping CURE SYNGAP1 fund research to ultimately do just that. We need to create some noise, a big splash, and make potential donors and researchers aware of and interested in SYNGAP1 so we can Cure SYNGAP1 sooner rather than later!

How can you help? We’re glad you asked!

Ten Easy Ways To Help

Donate or plan a fundraiser to help fund research

Take a family photo holding our new Splash flyer & share

Prepare for a future cure – sign up for Studies today!

Follow CURE SYNGAP1 – like & repost our messages; tag us on yours

Get involved – volunteer with CURE SYNGAP1

Learn more – watch our webinars, read our blogs & resources

Tell others to listen to our podcasts, read our newsletter!

Share your Warrior’s story, make a movie, write a blog!

Share your story with local media – start here!

Share our SYNGAP1 Brochure with your family, friends, doctors, neighbors!
Spread Awareness throughout your community!

There is nothing more important to us than our families!

Everyone volunteering for CURE SYNGAP1 works tirelessly to support, advocate, and provide resources for our community. Our website is a one-stop shop to learn about SYNGAP1, meet our patients, watch webinars, or sign up to volunteer. We have printable resources, an ICD code, and a checklist for newly diagnosed families. We make it easy to donate in the US, EU, or UK.

Celebrate Splash4Syngap every year!

Please help us spread awareness this June and throughout the year in whatever way you can. It takes a village to raise a child – it takes the world to raise a child with SYNGAP1! Together we can make a difference and overcome this disease.