Celebrating CURE SYNGAP1’s Most Impactful Supporters
We are forever grateful to recognize our most generous donors for their steadfast commitment to curing SYNGAP1. Their enduring support accelerates science, drives discovery, and brings life-changing treatments closer every day. These supporters invest in hope for children and families living with an ultra-rare disease, while helping to carve a path toward a brighter future for all those affected by SYNGAP1-Related Disorders.
An asterisk (*) indicates a company match included in this listing.
This list is a compilation of donations to CURE SYNGAP1 (FKA SynGAP Research Fund) from its inception through January 5, 2026. Listings will be updated annually in the first quarter of the year. If you have any questions, notice an error, or prefer to be listed as anonymous, please let us know by filling out this form.
$1,000,000+
Ashley Evans & Mike Graglia (Tony)
$500,000+
Hillside Foundation (Tony)
$250,000+
Swiss Philanthropy Foundation (Tony)
Tina McGlashing & Ernie Tavilla (Myla)
$100,000+
Carol & David Freirich (Hattie)
Stella Tavilla (Myla)
P. Tavilla Co. (Myla)
Suzanne & Brent Jones (Jansen)
Christen & John Scott (Jansen)
Norman Roskin (Kai)
Judy & Carroll Jones (Jansen)
Golob Family (Tony)
$50,000+
Susan Tavilla (Myla)
Marta Dahiya (Sofia)
Quick & Quayle Family (Kaylie)
Jack Shi, Unlock Defi
Kathy & Mike Langen (Charlie)
Pauline Anna Tavilla (Myla)
Webster Family | Campdraft Association (Gracie)
Marino Family (Tony)
Harriet & John Hill (Kiera)
Kathryn Helde (Joey)
$25,000+
Lindsay & Peter Halliburton (Carter)
Kendall & Carroll Jones (Jansen)
Duggan & Gerovich Family (Hannah)
Fiscus Family (Axel)
Frank Rossetti | Produce Connection (Myla)
Sara & Craig Bower (Camden)
Walmart* (Camden)
Eric Edell (Tony)
Creator Warehouse (Emmitt)
Jessica & Tom Fares (Cole)
Juile McNamar (Ty)
Ghegan Family | Bonded Service Warehouse, Inc. (Wells)
Monica & Aaron Harding (Jaxon)
Steven & Sandy Smith (Myla)
Pat & Sandy Vreeland (Jansen)
Finn & Sandler Family (Tony)
Illinois Tool Works* (Erin)
Ashley & Justin Albrecht (Harper)
Keshia Hohenstein | GitHub* (Kaia)
Judith & Federico Graglia (Tony)
John Hyland (Michael)
Rebecca Avery (Elsie)
Nancy & Brian Kessler (Caren)
Marjorie & Bob Fowler (Jansen)
Old Oaks Foundation (Hattie)
Kathleen & Charles Buffon (Jansen)
Anil Sethi
Intel Corporation (Emmitt)
$15,000+
Victoria Arteaga & Juan Gomez (Amelia)
Schuck Family (Tony)
Glenn Youngkin (Tony)
Sandra Horbach (Tony)
Lindsay Wieczorek & Andrew Rosa Borges (Adeline)
Emily & Gordon Barnes (Hadley)
Nicole Ciccone & Jeff Getbehead (Jackson)
Nelly & Ed Warshauer (Jack)
Hirschfeld Family (Caren)
Catherine & Jonathan Zendell (Michael)
Jennifer & James Seery (Kiera)
Dori & Greg Cappola (Kiera)
Evangelist Family (Tony)
Francisco Partners* (Tony)
Sydney & Brett Stelmaszek (Emmitt)
Global Payments (Ellie & Jansen)
Kelly Navarro (Hartley)
Patrick McCarter (Tony)
Yvonne Ho (Emmitt)
$10,000+
Melissa & Brian Smith (Matthew)
Mason Medina & Ryan Seery (Kiera)
Comeaux Family (Hartley)
Helen & WIlliam Bost (Jansen)
Ashley & Kevin Frye (Nathan)
Truist Financial Corporations* (Jansen)
Jessica Bell & Justin Row (Greyson)
Kim & Steven Gore (Delaney)
Elizabeth & Bryan Werner (Erin)
Sharon Tavilla (Myla)
Clarke Family (Brie)
Amb Family (Logan)
Robin Zendell (Michael)
Eileen & Kevin Shields (Jansen)
Meredith & Jeff Vreeland (Jansen)
Compression Management Services (Rocco)
Peterson Family
Janet & Dennis Nordmoe (Olivia)
Bruce Burger (Hadley)
Julie & Michael Miles (Miller)
Megan & Roman Lipman (Kiera)
Huganir & Magsamen Family
Bryan Bernasek (Tony)
Georgia Power Foundation (Jansen)
John T. Jackson Foundation (Hattie)
Kenigsberg & Pincus Family (Tony)
Kirkland & Ellis LLP (Tony)
Krause Family (Tony)
Mehrotra & Kolhatkar Family (Tony)
Reeves Family (Emmitt)
Tanimura & Antle Freshfoods Inc (Myla)
The Goldhirsh Foundation (Tony)
The Mary Alice and Bennett Brown Foundation (Jansen)
Winn Family (Tony)
$5,000+
Tarasiuk & Klein Family (Kasia)
Holly & Brian Prantil (Josey)
Bradley Quick Family (Kaylie)
Ashley & Andrew Aiken (Jansen)
The Heber Family (Theo)
Paul Urban
Truist Wealth Management (Jansen)
Emily Hall Tremaine Foundation (Jansen)
Melissa & Michael Foster (Hattie)
Michael Ann & Wellborn Price (Wells)
Catherine Gloor (Emmy)
Jessica & Ed Blee (Jansen)
Newell & Tom Harbin (Jansen)
Carlisle Family (Hadley)
Mosqueda Family (Myla)
Emily & Justin Haynie (Jansen)
Margaret & John Long (Jansen)
John Cerasuolo Co. Inc (Myla)
Edmundson Family (Thomas)
Kara & Trey Weatherly (Jansen)
Langdon Family (Tony)
Del Sordi Family (Devin)
Kimberly & Kris Funkhouser (Jansen)
Cowger Family (Matthew)
Mary Clancy & Kevin Peak (Jansen)
Wullschleger Family (Tony)
Erika Whyte (Emmy)
Whalen Family (Emmy)
Apple*
Austin & Allison Pugmire | Pugmire Lincoln & Ford of GA (Jansen)
Executive Securi (Carter)
Maselli Family (Myla)
Noland Family (Erich)
Deckers & Frommelt Family (Bear)
Morris Family (Emmitt)
Dabbs Family (Carter)
Susan Halliburton (Carter)
George Lynch (Harper)
Yassibas Family (Ishan)
Elise & Kyle Baumann (Jansen)
Todd Burger (Hadley)
Margaret & Alec Lesley (Jansen)
Claire Tavilla (Myla)
Clifford Family (Myla)
Feldman Family (Matthew)
Camenisch Family (Tony)
Jane & Jim Sibley (Jansen)
Condakes Family (Myla)
Connectify Corp (Emmitt)
Keri & Tom Gugliotta (Jansen)
Blake & Chris Kopecky (Jansen)
Jenny & Gasper Magallanes (Dani)
Dominion Energy Charitable Foundation* (Brie)
Daswani Family (Shaan)
Lee Family (Tony)
Salava Family (Camden)
Woods Family (Annie)
Coelho Family (Hadley)
Hodes Family (Caren)
Tschaeche Family (Thomas)
Mullin Family (Caren)
Fogle Family (Julian)
Hyatt Family (Phoebe)
Google*
Margaret & Johnson Cook (Jansen)
Jordan Family
Nirody Family
Gail & Bill Briggs (Jansen)
Laura & David Green (Ellie)
Alissa & Brooks Beard (Jansen)
Fresh Valley Foods Corp (Myla)
Clark Family (Rocco)
Pace Family (Tony)
Koula Angelinas | DRA Advisors LLC (Caren)
Mindy & Steve Little (Jansen)
Brian Decker (Tony)
Alaw Family (Emmitt)
Atlantic Health System (Caren)
Austin Pollet | Paul, Weiss, Rifkind, Wharton & Garrison LLP
C S Tecnologia SAS BIC (Amelia)
Carol & John Snider (Jansen)
Chandna Family (Tony)
Fairview Machine Company (Hadley)
Fowlkes Family (Nathan)
Hagood Hope for Children (Myla)
Hooper Family (Tony)
Kelemen Family
Lyons Family (Tony)
Mamie Snider (Jansen)
MC Squared Foundation (Phoebe)
Mindy Mackenzie (Tony)
Peechu Family (Tony)
Pickrel Family
Principe Family | Cutting/Sewing Room Equipment Co. (Eliza)
Ropes & Gray LLP (Tony)
Sara & John Nastopoulos (Jansen)
US Freight, LLC (Myla)
Please note: This page recognizes our Champions of Hope, including individuals, families, and companies who give in honor of a specific family or in support of our overall organization. Rare disease industry sponsors are recognized on our Sponsors page.