CURE SYNGAP1 is grateful to the friends and families who donate for their loved ones. We honor them here on our Champions of Hope page.
Current and Upcoming Fundraisers
Fundraising Tips from the CURE SYNGAP1 Pros!
Want to Hold Your Own Fundraiser?
We Can Help – Fill Out This Form Today!
If you have questions, please reach out to CURE SYNGAP1’s fundraising team at giving@cureSYNGAP1.org.
Additional Resources
Sponsorship Opportunities with CURE SYNGAP1 are Available at cureSYNGAP1.org/Prospectus
CURE SYNGAP1’s Amazon Storefront
Browse our SYNGAP1 family suggestions, but remember:
Any purchase you make from anywhere on Amazon’s site will benefit CURE SYNGAP1!
Details at cureSYNGAP1.org/Det
Together, we’re making a difference. Thank you to all who have launched fundraisers for CURE SYNGAP1!
ALL FUNDRAISERS BY YEAR
FOR INSPIRATION
2026
Total Raised: $808,531
CURE SYNGAP1 Night of Impact
Total Raised: TBD
Unlock Their Tomorrow – 2026
Sprint for Syngap 2026
Total Raised: $110,673
A Brighter Future for Ada
Scramble for Syngap
Total Raised: $34,394
Fight for Felipe
A Future For Ford
Million Dollar Bike Ride
Shoot for Syngap1
Emmy’s 4th Birthday Fundraiser
Crafts For A Cure in honor of Naya
MaryAnne’s Bake Sale in honor of Olivia
2025
Unlock Their Tomorrow
Sprint4Syngap 2025
Beacon of Hope 2025
Total Raised: $175,586
Conference Sponsors
5th Annual Gala for SYNGAP1
Scramble for Syngap
Total Raised: $15,795
Million Dollar Bike Ride
Facebook and Instagram Fundraisers
Sweets for SYNGAP1
Harper’s Hope
Story’s Birthday Fundraiser
Loving on Liam
Kaia’s Gallery of Hope
Mindy’s Half Marathon
Hope4theCure
Black Canyon Ultra 100K Race
Total Raised: $213.80
Newtown Middle School, PA
Total Raised: Pending
Students for Rare
2024
Coast2Coast Clinics 2024
Sprint4Syngap 2024
SRF Gala Honoring Caren Leib
Conference Sponsors
(Incl UPenn match)
Million Dollar Bike Ride 2024
UFD Charity Stream 2024
Facebook and Instagram Fundraisers
Scramble for Syngap 2024
SYNGAP1 Missense Fund
Running for Charmander Fundraiser
Save Emmy’s Future
Hope4theCure
Combined Federal Campaign
Raising For Rocco!
2024 SRF Holiday Ornament
In Memory of Richard Bruce McKenney
Rare Disease Day – Richmond Area
Jaxon’s SYNGAP1 Journey
Cure-a-Thon
2023
Total Raised: $252,117
Sprint4Syngap 2023
Total Raised: $117,751.64
Cannonball for the Cure 2023
Total Raised: $111,745
2023 SynGAP Research Fund Gala Honoring Caren Leib
Total Raised: $100,402.56
Hope For Hattie
Total Raised: $51,605.13
SYNGAP1 Conference 2023 – tickets, sponsorships & dinner
Total Raised: $49,195
Facebook and Instagram Fundraisers for 2023
Total Raised: $46,862
(Incl UPenn match)
Million Dollar Bike Ride 2023
Hope For Harper
Hope For Hadley
Syngap Paddle Slap – 2023
Scramble for Syngap 2023
Give Up Your Cup!
Total Raised: $4,425
Giving Tuesday 2023
Support SRF for Story’s 19th Birthday!
Ironman4Syngap Barcelona
RDD Biorasi Fundraiser 2023
2022
Soiree 2022
Rarebase 2022- Jansen’s Journey
Cannonball for the Cure 2022
Facebook and Instagram Fundraisers for 2022!
Caren Leib Gala 2022
SYNGAP1 Conference 2022: tickets, sponsorships & dinner
Scramble 2022
UFD Tech March 2022
Total Raised: $20,635
Million Dollar Bike Ride 2022
SRF Rare Disease Day 2022
Shane’s English Channel Swim 2022
Patient Derived Animal Models
Raoul’s London Marathon 2022
Ride for Raylan
Derek Bowie Grant 2022
Kyle’s 16th Birthday Supporting SRF!
A Cure for Luna
2021
Total Raised: $173,988
Facebook and Instagram Fundraisers for 2021!
Sprint For Syngap 2021
Support SRF iPSCs!
First Annual Caren Leib Gala
Total Raised: $12,856.62
Million Dollar Bike Ride 2021
Giving Tuesday 2021
Total Raised: $1,926
Kai’s 3rd Birthday Fundraiser
SYNGAP1 Fundraiser in Memory of Shirley Griffen Henderson
In Memory of Donelda Clara (Buell) Frye
Still looking for more inspiration? Our collection of blogs includes several about fundraising – you can see them here!