Join the Registry

Join the SYNGAP1 Registry at Ciitizen.com/SYNGAP1/SRF

Every family can share their data for research

The single most important thing that families can do to help this community is to sign up for the Ciitizen Natural History Study at Ciitizen.com/SYNGAP1/SRF.

Ciitizen is the largest single study of SYNGAP1 patients

Over 125 families in the US have already signed up making this the largest single study of SYNGAP1 patients in the world. SRF has recently given a large grant to Boston Children’s Hospital to study this data and develop an updated Natural History of our patients.

Learn more about Ciitizen

Below you can find a series of article we have written about Ciitizen as well as a video explaining the platform.