SRF Newsletter Library

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March 31, 2024: Connection is Everything for SYNGAP1 Families

February 25, 2024: Newsletter #37 – Spread Awareness of SYNGAP1 to commemorate Rare Disease Day

January 6, 2024: Newsletter #36 – 2023 Recap ➕ 2024 Resolutions for a SYNGAP1 cure!

October 10, 2023: Newsletter #35 – Fundraising is important – as is everything else!!

August 18, 2023: Newsletter #34 – Share Your Story

July 12, 2023: Newsletter #33 – International Inspiration

June 27, 2023: Newsletter #32 – SRF is 5 years old!

May 16, 2023: Newsletter #31 – Sprint4Syngap 2023 is in the books!

April 5, 2023: Newsletter #30 – SYNGAP is Hot!

February 28, 2023: Newsletter #29 – Rare Disease Day Special Issue

February 14, 2023: Newsletter #28 – 2023 Will Be Epic! How Can You Help?

January 2, 2023: Newsletter #27 – SRF – 2022 Highlights, Year-end News, & We’re Growing!

December 22, 2022: Newsletter #26 – Two Days in Nashville

November 15, 2022: Newsletter #25 – SYNGAP-A-LOOZA

October 20, 2022: Newsletter #24 – 5 ways to jump into #SYNGAP1 advocacy

July 29, 2022: 🇨🇦 🇺🇸 🇦🇺 🇪🇺 🇦🇹 Announcing two global collaboration grants for SYNGAP1 #BowieID #CourtneyMissense

June 3, 2022: Nashville Calling 🎸 Scientific Meeting & Family Connect 📆 December 1&2

April 27, 2022: 📣 Praxis announces SYNGAP1 Program. #Sprint4Syngap is Saturday. Webinar tomorrow.

February 28, 2022: Happy #RareDiseaseDay!

December 1, 2021: Are you joining us on Friday for the 3rd Roundtable?

November 3, 2021: See you at the webinar tomorrow? 3rd Annual Roundtable in one month! So much more. What a month!

October 1, 2021: F78.A1 is live, there are 883 patients, the Medical Considerations document is live and #UFDcure is next week

September 2, 2021: Wow, we are making great progress! -Webinars, ICD-10, Gala, Fundraisers, Podcasts, Connections, and so much more!

July 1, 2021: The #SyngapCensus 2Q21: 808 worldwide! – ICD-10 Code – Research Awards – Studies – Events – Interviews – Caren’s Birthday – And So Much More!

April 15, 2021: Five things you need to know today, April 15, 2021

March 4, 2021: We launched the Sprint4Syngap, Ahituv and Yeme webinar as well as new designs in the store

February 16, 2021: Praxis just partnered with Ciitizen! Have you seen the Caren Movie Trailer?

February 2, 2021: Frazier Press Release. Also, four invitations and an article on VUS mutations

November 23, 2020: Five things SynGAP families & professionals need to know this week.

November 2, 2020: Are you ready for the webinars this week & the SRF Roundtable on December 4? See two new movies & support our new #SRFCoba fundraiser. Lots more.

October 3, 2020: SYNGAP Weekend Read – Roundtable, ASOs, Ciitizen, Census, Webinars…

August 1, 2020: Happy #RNADay! #SRFHeller Webinar. Merch, Masks & a Podcast!

July 8, 2020: Epigenetics Grant, #SynGAPCensus = 600, Masks, Webinars & Movies

June 17, 2020: SRF Webinar Series Starts tomorrow! #Splash4Syngap in 4 days!

May 29, 2020: #Splash4SynGAP is coming 6.21 & other SRF news!

April 8, 2020: Two invitations for you, COVID-19 info, #SyngapCensus & more

March 6, 2020: SynGAP: SRF Advocacy, Organoids, & more…

January 14, 2020: Syngap Research Fund presents its first official newsletter!