Jackie Kancir

Jackie Kancir, SYNGAP1 Mom and Advocacy Leader for SRF talks about daughter Jadyne and shares advice for all rare disease parents.

Show Notes

In this special episode, guest host Jessica Johnson talks with Jackie Kancir. The two SYNGAP1 Moms discuss education systems, on the farm with Jadyne (Jackie’s daughter), make-up, behavioral issues, Jadyne’s optimism, and advocating for your children! This episode will educate everyone in the rare disease world. “Behavior is communication.” Listen for details!

See all episodes at ⁠⁠⁠⁠⁠Syngap.Fund/Stories⁠⁠⁠⁠⁠.

Jadyne’s Warrior Story⁠⁠⁠

Connect with Jackie:

Other Links

Connect with ⁠⁠⁠⁠⁠⁠Ashley:

Connect with ⁠⁠⁠⁠⁠⁠Jessica:

SRF & SYNGAP1 Info:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

Pre-register for SYNGAP1 Conference 2024

Connect with SRF (@curesyngap1):

Family Zoom Meeting (Weekly on Wednesdays, 8PM ET):
⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Syngap.Fund/SRFfam⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Meeting ID – 972 0059 2178 Passcode – 848417

Sibling Zoom Meeting (Monthly on 1st Thursday, 8PM ET):
⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Syngap.Fund/SRFfam⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Meeting ID – 972 0059 2178 Passcode – 848417

Comments: ⁠⁠⁠ed@curesyngap1.org⁠⁠⁠

Music: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠In the Forest… by Lesfm from Pixabay ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

Episode 027 SYNGAP1 Stories, March 3, 2024

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