Paulina Polanco

Paulina Polanco, SRF volunteer and sibling to twin sisters with SYNGAP1, shares her very personal story of love, hope, and the loss of what could have been.

Show Notes

The most moving episode yet! Paulina Polanco is caregiver to her twin sisters Libertad (Libby) and Esperanza (Espy). She delivered a raw, personal address at the 2023 SYNGAP1 Conference hosted by SRF. This episode not only includes that speech, but Ashley talks candidly to Paulina to expand upon her life with twin Syngapians. See all episodes at ⁠⁠⁠⁠⁠Syngap.Fund/Stories⁠⁠⁠⁠⁠.

Warrior Story⁠⁠ for Libby & Espy

Paulina’s SRF Bio

Connect with Paulina:

Blog Posts Written by Paulina:

Other Links:

Ashley’s SRF Bio

Connect with ⁠⁠⁠⁠⁠⁠Ashley:

SRF & SYNGAP1 Info:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

Pre-register for SYNGAP1 Conference 2024

Connect with SRF (@curesyngap1):

Family Zoom Meeting (Weekly on Wednesdays, 8PM ET):
⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Syngap.Fund/SRFfam⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Meeting ID – 972 0059 2178 Passcode – 848417

Sibling Zoom Meeting (Monthly on 1st Thursday, 8PM ET):
⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Syngap.Fund/SRFfam⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Meeting ID – 972 0059 2178 Passcode – 848417

Comments: ⁠⁠⁠ed@curesyngap1.org⁠⁠⁠

Music: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠In the Forest… by Lesfm from Pixabay ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

Episode 026 SYNGAP1 Stories, February 13, 2024

#SYNGAP1StoriesLibby #SYNGAP1StoriesEspy #Syngap #SYNGAP1 #SYNGAP1Stories #SYNGAP1StoriesEp26 #Epilepsy #EpilepsyAwareness #Autism #AutismAwareness #IntellectualDisability #ID #Anxiety #Behavior #RareDisease #RareDiseaseResearch #SynGAPResearchFund #CareAboutRare #Advocacy #PatientAdvocacy #Neurology #GeneticTesting #Family #Water #Music #SyngapConf #SYNGAP1Siblings #Caregiver #WinnieThePooh