Ashley Frye

Our Host – Ashley Frye tells her family’s SYNGAP1 Story

Show Notes

Host Ashley Frye discusses her family’s journey to a SYNGAP1 diagnosis for her son Nathan and living with and caring for a young child with a rare disease.

What is SYNGAP1:  https://www.syngapresearchfund.org/home/what-is-syngap1

Syngap Research Fund:  https://www.syngapresearchfund.org/

Nathan’s Warrior Story:  https://www.syngapresearchfund.org/syngap-warrior/nathan

Cannonball For A Cure:  https://www.syngapresearchfund.org/post/pr-12-ufd-tech-hosts-second-annual-cannonball-for-the-cure-charity-stream-to-benefit-syngap-research-fund

Follow Ashley:  

Connect with SRF:  

SYNGAP10 Weekly Video Podcast with Mike: https://www.youtube.com/playlist?list=PLjpr3a14_ls38mAeOZeErFpEjbrw5mGhR

Wednesday Zoom Meeting for Syngap Families:
Syngap.Fund/SRFfam Meeting ID – 972 0059 2178 Passcode – 848417

Comments and suggestions:  ed@syngapresearchfund.org

Music:  In the Forest… by Lesfm from Pixabay  

Episode 001 SynGAP Stories, February 7, 2023

#SYNGAP1StoriesNathan #Syngap #SYNGAP1 #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology