Lauren Perry

Ashley talks with SYNGAP1 Mom & SRF Operations Mgr. Lauren Perry about Will’s recent successful VNS replacement surgery, markers & more

Show Notes:

In Episode 9, Ashley talks with SYNGAP1 Mom & SRF Operations Mgr. Lauren Perry. These two talk about Lauren’s  2 teenage sons, including Will, diagnosed in 2016, seizures, and Will’s recent successful VNS replacement surgery. They also chat about his typical day, markers, and pride in the SRF community.

Will’s Warrior Story
VNS Therapy

Follow Lauren:

Follow ⁠⁠⁠⁠⁠Ashley Frye⁠⁠⁠⁠⁠:

SRF & SYNGAP1 Info:⁠⁠⁠

Connect with SRF (@curesyngap1):

SYNGAP1 Conference 2023, hosted by SRF – ⁠⁠⁠Hotel Reservations⁠⁠⁠

Wednesday SRF Family Zoom Meeting:
⁠⁠⁠⁠Syngap.Fund/SRFfam⁠⁠⁠⁠ Meeting ID – 972 0059 2178 Passcode – 848417

Comments: ed@syngapresearchfund.org

Music: ⁠⁠⁠⁠In the Forest… by Lesfm from Pixabay ⁠⁠⁠

Episode 009 SYNGAP1 Stories, May 30, 2023

#SYNGAP1storiesWill #Syngap #SYNGAP1 #SYNGAP1Stories #VNStherapy #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology