Ashley Evans

Ashley chats with SRF Co-Founder, and SYNGAP1 Mom to Tony, Ashley Evans on the 5th birthday of SRF!

https://open.spotify.com/episode/3EvtgSydlkb9vZABVFBHCU?si=900439ce2fd34370

Show Notes:

In Episode 11, our host, Ashley, chats with SRF Co-Founder and SYNGAP1 Mom Ashley Evans to celebrate SRF’s 5th birthday! They talk about starting SRF, progress made during the past five years, the dedicated community of SRF volunteers, hope for the future, moving, and, of course, Syngapian Tony and his now 5-year-old brother John.

Ashley’s SRF bio
Tony’s Warrior Story

More links:

Follow ⁠⁠⁠⁠⁠Ashley Frye⁠⁠⁠⁠⁠:

SRF & SYNGAP1 Info:⁠⁠⁠

Connect with SRF (@curesyngap1):

SYNGAP1 Conference 2023, hosted by SRF – ⁠⁠⁠Hotel Reservations⁠⁠⁠

Wednesday SRF Family Zoom Meeting:
⁠⁠⁠⁠Syngap.Fund/SRFfam⁠⁠⁠⁠ Meeting ID – 972 0059 2178 Passcode – 848417

Comments: ed@syngapresearchfund.org

Music: ⁠⁠⁠⁠In the Forest… by Lesfm from Pixabay ⁠⁠⁠

Episode 011 SYNGAP1 Stories, June 27, 2023

#SYNGAP1SoriesTony #Syngap #SYNGAP1 #SYNGAP1Stories #siblings #SYNGAP1siblings #founder #rarediseasesiblings #epilepsy #epilepsyawareness #autism #autismawareness #intellectualdisability #id #anxiety #raredisease #rarediseaseresearch #SynGAPResearchFund #careaboutrare #advocacy #patientadvocacy #neurology #yoga