Monica Harding

In this very candid episode, SYNGAP1 Mom Monica Harding opens up to Ashley about her 17-year-old son Jaxon.

Show Notes:

In this very candid episode, SYNGAP1 Mom Monica Harding opens up to Ashley about her 17-year-old son Jaxon. She describes his first seizures, aggression, going to church, the impact of COVID changing his schedule, and how it affected the entire family. This is an important glimpse into the struggles and joys a strong family living with SYNGAP1 faces.

Monica’s SRF ⁠bio⁠
Jaxon’s Warrior ⁠Story⁠

More links:
⁠Jayden’s Juice

Follow ⁠⁠⁠⁠⁠Ashley Frye⁠⁠⁠⁠⁠:

SRF & SYNGAP1 Info:⁠⁠⁠

Connect with SRF (@curesyngap1):

SYNGAP1 Conference 2023, hosted by SRF – ⁠⁠⁠Hotel Reservations⁠⁠⁠

Wednesday SRF Family Zoom Meeting:
⁠⁠⁠⁠Syngap.Fund/SRFfam⁠⁠⁠⁠ Meeting ID – 972 0059 2178 Passcode – 848417

Comments: ed@syngapresearchfund.org

Music: ⁠⁠⁠⁠In the Forest… by Lesfm from Pixabay ⁠⁠⁠

Episode 012 SYNGAP1 Stories, July 11, 2023

#SYNGAP1SoriesJaxon #Syngap #SYNGAP1 #SYNGAP1Stories #epilepsy #epilepsyawareness #autism #autismawareness #intellectualdisability #id #anxiety #raredisease #rarediseaseresearch #SynGAPResearchFund #careaboutrare #advocacy #patientadvocacy #neurology #genetictesting #therapy #family #militaryfamily