Nancy Kessler

Nancy Kessler, SRF BOD member, talks about her sister, Caren, the oldest known person living with SYNGAP1 at age 67

Show Notes:

Nancy Kessler is an SRF BOD member, an active volunteer & advocate, and has hosted the SRF Gala honoring her sister Caren Leib for three years, including coming up on October 21, 2023. Caren is the oldest known person diagnosed with SYNGAP1. It is impossible to do justice to her 67 years on this planet, but luckily, Caren starred in her own movie, and Nancy has shared numerous other stories about her sister’s life. We hope you enjoy this unique episode, then check out the links below to learn even more about this family that is so special to the SynGAP Research Fund community.

Nancy’s ⁠SRF Bio⁠
Caren’s ⁠Warrior Story⁠

Additional Links:

Follow Nancy:

Follow ⁠⁠⁠⁠⁠⁠Ashley Frye⁠⁠⁠⁠⁠⁠:

SRF & SYNGAP1 Info:⁠⁠⁠

Connect with SRF (@curesyngap1):

SYNGAP1 Conference 2023, hosted by SRF – ⁠⁠Registration⁠⁠

Wednesday SRF Family Zoom Meeting:
⁠⁠⁠⁠Syngap.Fund/SRFfam⁠⁠⁠⁠ Meeting ID – 972 0059 2178 Passcode – 848417

Comments: ed@syngapresearchfund.org

Music: ⁠⁠⁠⁠In the Forest… by Lesfm from Pixabay ⁠⁠⁠

Episode 020 SYNGAP1 Stories, October 17, 2023

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