CURE SYNGAP1 Podcast
Welcome to the CURE SYNGAP1 Podcast, your weekly briefing on everything you need to know about SYNGAP1.
Stay current on what CURE SYNGAP1 is doing to advocate for families/patients and to advance research into SYNGAP1, hosted by Mike Graglia.
Listen below or find us on your podcast player of choice!
And PLEASE – give us 5-stars everywhere – it matters!
See cureSYNGAP1.org/Rating to find out why!
USA Today, Synchrony Conf, #EEC2026, Portugal & Family Resources — #CureSYNGAP1 in Action #S10E218
#Angelman ASO Fails, #AlexanderDisease ASO Wins: #SYNGAP1 CAMP4 ASO? NYT on Clinical Trials #S10E217
Big Week for #SYNGAP1: Trials, Data, #Epilepsy, Palo Alto & Athens #S10E216
#AdamsCamp & Tony in Denver: Support, Progress & Open Issues, taking a break from #LakeMary #S10e215
Go Ada & Ford. Fundraise now. #CTRPoll Do it now. Porter’s Sib Story. ORCA Study soon! #S10e214
CAMP4 Trial Approved in Australia & Argentina, Connect for news, Ada & Ford Fund a grant, #S10e213
#Future4Ford. 2Q26 #SYNGAP1Census = 1,806 Patients (+45) $CAMP #ValproateDemandBetter #S10e212
We need a #SYNGAP1 mouse lab? #BIO2026 #MDBR 19 days for Merch. #GeneticTesting #ASOwebinar #S10e211
#ILoveSomeoneWithSYNGAP1. June 21 is SYNGAP1 Awareness Day. $159 rooms at the GrandHyatt! #S10e210
#NightOfImpact a huge success & we are lucky to have Dr. Helen R Willsey. #S10e209
Tony update. #ThisIsOursToLose. More great results from $CAMP4. #NightOfImpact in 9 days! #S10e208
Earnings reports: CAMP4 files. Stoke optimizing. Praxis on track. 2026 Video! #S10e207
Longitudinal Data Matters! Prioritized list of studies! #Sprint4SynGAP a great success! #S10e206
Comment on Haystack Petition to FDA. New Board of Trustees. #ICD10 F78.A1 #CureID #S10e205
Global Advocacy. #NL51. Snippets! #SYNGAPcensus = 1,761. UT Arlington & Cook Children’s. #S10e204
DSC-III and Data – CURE SYNGAP1 is working tirelessly to increase SYNGAP1 Knowledge #S10e203
It is time to get ready for clinical trials, this is how. #S10e202
We need to raise funds for the critical work of CURE SYNGAP1, join us with #Sprint4SYNGAP #S10e201
#RareDiseaseWeek! We are doing much beyond grants… too much. Get the Citizen Health App! #S10e200
