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Press Releases

June 5, 2026

Dr. Helen Willsey and Dr. David Kastner to investigate SYNGAP1’s role in cilia function and behavior with support from CURE SYNGAP1 – PR50

May 31, 2026

Funding for “Validating Remote Developmental Assessments in SYNGAP1-Related Disorders” grant awarded to co-PIs Julie Orlando DPT, PhD of ENDD at U Penn and Dr. Jill McKee of CHOP from CURE SYNGAP1 – PR49

May 31, 2026

Global SYNGAP1 organizations form CURE SYNGAP1 COLLECTIVE (CSC) to accelerate treatments and ensure patient access through coordinated global action – PR49

May 20, 2026

CURE SYNGAP1, fka SynGAP Research Fund (SRF), announces the release of their 2025 impact report – unlock their tomorrow – PR47

May 19, 2026

CURE SYNGAP1 announces $111,960 investment in RARE-X partnership to advance ProMMIS patient-reported outcome measure data collection – PR46

April 15, 2026

CURE SYNGAP1 announces 2026 board of trustees transition – PR45

March 20, 2026

SynGAP Research Fund (SRF) announces formal transition to CURE SYNGAP1, reinforcing commitment to treatment development – PR44

March 9, 2026

CURE SYNGAP1 (fka SynGAP Research Fund) awards grant to Dr. Ryan Dhindsa as part of biomarker project to transform SYNGAP1 research – PR43

February 3, 2026

Dr. Paul Donlin-Asp of the University of Edinburgh to dissect the molecular functions and regulation of local SYNGAP1 protein synthesis with support from CURE SYNGAP1 (fka SynGAP Research Fund) – PR42

January 27, 2026

Dr. Àlex Bayés Puig advances SYNGAP1 research with new SynGAP biomarker study funded by CURE SYNGAP1 – PR41

July 3, 2025

Prof. Kristian Strømgaard is Awarded CURE SYNGAP1 Grant for Research on Biomolecular Condensates – PR40

April 25, 2025

Progress in SYNGAP1 therapeutic development and the early history of the SynGAP Research Fund (SRF) chronicled in SRF’s first published paper – PR39

April 15, 2025

SynGAP Research Fund (SRF), dba Cure SYNGAP1, announces Board of Trustees Update 2025 – PR38

March 25, 2025

Dr. Vikaas Sohal of The University of California, San Francisco receives a $130,000 SynGAP Research Fund (SRF) grant to explore therapeutic strategies for reversing cognitive deficits in SYNGAP1-related disorders – PR37

March 18, 2025

Dr. Julia Dallman awarded SynGAP Research Fund (SRF) grant for SYNGAP1 research targeting gastro-intestinal treatment development – PR36

March 11, 2025

Dr. Megan Abbott and the University of Colorado awarded $450,000 establishing a Clinical Research Center of Excellence that will also serve as a second site for SYNGAP1 ProMMiS – PR35

February 11, 2025

SynGAP Research Fund (SRF) dba Cure SYNGAP1 Announces the Release of Their SYNGAP1 Impact Report for 2024 – PR34

December 18, 2024

Michael Courtney of Turku Bioscience Center receives grant for research on SYNGAP1 missense variants and drug repurposing from SynGAP Research Fund (SRF) dba Cure SYNGAP1 – PR33

December 4, 2024

$230K Grant Awarded to The Jackson Laboratory (JAX) to Advance Translational Research on SYNGAP1-Related Disorders – PR32

December 1, 2024

Virginie McNamar appointed President and Chief Operating Officer (COO) of SynGAP Research Fund (SRF) dba Cure SYNGAP1 – PR31

November 12, 2024

4M Therapeutics Awarded $120,000 Grant from SynGAP Research Fund to Evaluate GSK3β Inhibition in Preclinical SYNGAP1-Related Disorders Research (Press Release issued by 4MTx)

October 29, 2024

Dr. Clement Chow at the University of Utah receives support from SynGAP Research Fund (SRF) to accelerate therapeutic development for SYNGAP1-Related Disorders – PR30

September 17, 2024

Six Patient Advocacy Groups Collaborate to Co-fund a Single-Center Observational Study of Seizure Types in Rare Genetic Epilepsies – PR29

September 12, 2024

Dr. Baptiste Lacoste, of the Ottawa Hospital Research Institute and uOttawa Brain and Mind Research Institute, receives a SynGAP Research Fund (SRF) Grant for Groundbreaking Research on Vascular and Metabolic Dysfunction in SYNGAP1-Related Disorders (SRD) – PR28

September 10, 2024

Unravel Biosciences and SynGAP Research Fund (SRF) Announce clinical research to accelerate new and repurposed therapies for SYNGAP1-Related Disorders – PR27

September 5, 2024

UPenn’s Orphan Disease Center to amplify SYNGAP1 research: SynGAP Research Fund’s Million Dollar Bike Ride team raises $74,851 for one-year grant – PR26

July 18, 2024

SynGAP Research Fund (SRF) continues support for exosome research for SYNGAP1-related disorders (SRD) in the lab of Professor Janos Zempleni of the University of Nebraska-Lincoln – PR25

July 9, 2024

SynGAP Research Fund (SRF) increases support for SYNGAP1 organoid research at the University of Southern California’s Quadrato Lab – PR24

July 2, 2024

SRF launches the SYNGAP1 missense account with Nordmoe family donation – PR23

May 23, 2024

SynGAP Research Fund (SRF) recognizes 50+ patient advocates driving SYNGAP1 research in the United States – PR22

April 4, 2024

SynGAP Research Fund (SRF) Awards Collaborative Grant to Advance Research of SYNGAP1-Related Disorders in Adults – PR21

April 3, 2024

SynGAP Research Fund (SRF) Appoints Kathryn Helde, PhD, as Chief Scientific Officer (CSO) Focusing on SYNGAP1 Research – PR20

March 25, 2024

SynGAP Research Fund (SRF) announces changes to its board of directors – pr19

November 2, 2023

SynGAP Research Fund (SRF) awards $105,000 grant & launches research study to adapt neurobehavioral evaluation tool (NET) for SYNGAP1-related Intellectual Disability (SRID). #SRFFrazier – PR18

October 26, 2023

SynGAP Research Fund awards $100,000 for investigating the impact of SYNGAP1 missense variants using structural bioinformatics

October 19, 2023

Uniting for Progress – the Fifth Annual SYNGAP1 Conference hosted by SynGAP Research Fund (SRF) will take place November 30th in Orlando, Florida. #SyngapConf

August 16, 2023

SynGAP Research Fund (SRF) awards $130,000 grant to advance research on maladaptive myelination & SYNGAP1-related epilepsy

April 5, 2023

SynGAP Research Fund awards a collaborative grant to Tang Lab & AXONIS Therapeutics

January 5, 2023

SynGAP Research Fund US and UK award grant to the University of Edinburgh Medical School’s Patrick Wild Centre & Centre for Discovery Brain Sciences

October 4, 2022

SynGAP Research Fund, Wandoan Campdraft and Soley for SYNGAP1 award grant to Johns Hopkins University for development of mRNA amplifier for SYNGAP1 haploinsufficiency

July 28, 2022

Overcome SYNGAP1, Wandoan Campdraft for a Cure & SynGAP Research Fund Announce CAD $150,000 Grant for Small Molecule Translational Research to Prof. Derek Bowie of McGill University in Canada

July 6, 2022

Leon & Friends, SynGAP Research Fund USA & SRF Europe partner to grant €180,000 to Professor Courtney of Turku Bioscience Centre, Finland

April 26, 2022

SynGAP Research Fund (SRF) announces $128,000 grant for stem cell gene therapy translational research to Dr. Joe Anderson of the University of California, Davis

March 29, 2022

SynGAP Research Fund (SRF) Announces Grants to Dr. Kurt Haas and Dr. Graziella Di Cristo in Partnership with Canada’s Rare Diseases: Models and Mechanisms Network (RDMMN)

February 28, 2022

SynGAP research fund deploys #CouldItBeSYNGAP1 screening tool in partnership with probably genetic

February 22, 2022

SynGAP Research Fund announces $100,000 Exosome Grant to Professor Janos Zempleni of the University of Nebraska-Lincoln

October 13, 2021

SynGAP Research Fund Announces $308,000 Multidisciplinary Biomarker Grant to Boston Children’s Hospital

June 8, 2021

SynGAP Research Fund Announces #SRFCoba Grant to Dr. Marcelo Coba of the University of Southern California

May 3, 2021

SynGAP Research Fund and illumina Present “Celebrating Caren,” the Incredible Story of the Oldest Known SYNGAP1 Patient in the United States

February 2, 2021

SynGAP Research Fund Announces #SRFFrazier Grant to Dr. Thomas Frazier of John Carroll University

November 19, 2020

SynGAP Research Fund Announces Grant to Heller Lab of Neuroepigenetics