Jaxon

Connection is Everything

Hidden in the Genes: Jaxon’s SYNGAP1 Journey

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The Harding Family shares a special movie about their 18-year-old son Jaxon, and their family’s shared journey living with and caring for not only someone with SYNGAP1-related disorder (SRD), but also each other. To tell this story, parents Aaron and Monica Harding along with sisters Natalie and Michaela are joined by two of Jaxon’s therapists, Elemy Yeme and Kaely Ferrara.

A difficult childbirth, early delays, and an incomplete diagnosis led to a SRD diagnosis in 2015. Through the years, there have been seizures, aggression, injurious behavior, and fear for the future. There has also been support, adapting as a family, and the joy Jaxon brings to their daily lives.

Full Movie

Movie Premiere Details:

  • Date: April 13
  • Pre-event breakfast: 8-8:45am
  • Showtime: 9am PDT
  • Location: Mission Naz, 4750 Mission Gorge Place, San Diego, CA 92120

    “Whatever brings him joy, that brings me joy.” – Michaela Harding

    “Advice I would give Syngap siblings is not to be afraid of your situation. Share it with the people around you and all of your friends.” – Natalie Harding

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    Trailer