Now Enrolling!
Institution: NYU Langone Health
Principal Investigator: Orrin Devinsky, MD
Funding: CURE SYNGAP1 Grant 2024.1
Location: This study consists of surveys and a possible follow-up video interview – all performed remotely
Inclusion Criteria:
- Diagnosis of one of several rare epilepsy syndromes, including SYNGAP1;
- Age between 3 months and 35 years
- Has smart phone video recordings of one or more events, ideally accompanied by a video EEG recording of the same event
How to sign up: Please contact Kim Nguyen at 646-558-0842 or email her at Kim.Nguyen2@nyulangone.org. Please cc corey@cureSYNGAP1.org.