Observer-Reported Communication Ability (ORCA) Measure


Institutions: COMBINEDBrain and Duke University

Funding: FDA

Inclusion Criteria:

  • A caregiver or parent of a child between the ages of 1 and 19 with a diagnosis of SYNGAP1
  • Able to speak and read English
  • Able to participate in a 1 hour interview conducted via phone, Zoom, or Webex

How to sign up: Contact Kali Worth, SRF via