SRF in the Press

March 4, 2024
Best Self Atlanta
Jansen Jones: Healing Through Horses

February 29, 2024
Children’s Healthcare of Atlanta
Celebrating Amir and Jansen: Rare Kids Receive Specialized Care at Children’s

December 24, 2023
Rare Parenting Magazine
Early Signs of a Neurological Disorder

July 14, 2023
TN Dept. of Intellectual & Developmental Disabilities
TN START Program: Jadyne and Jackie

June 26, 2023
Nordonia Hills News
An Attempt at Normalcy – SYNGAP1 Awareness Day

April 3, 2023
The Oxford Eagle
Nathan’s dog

March 13, 2023
KMBC News – Kansas City
“We’re so hopeful’: Local girl fighting rare disease

December 23, 2022
Inside Precision Medicine
Rare Parents Tackling Rare Diseases

October 19, 2022
KDKA CBS News – Pittsburgh
Something Good: Helping Emmitt

September 30, 2022
WSPA 7News
1st Annual Scramble for SynGAP

July 14, 2022
Tennessee DIDD Start Program
TN START Program: Jadyne and Jackie

May 12, 2022
TN Dept. of Intellectual & Developmental Disabilities
TN START Assessment & Stabilization Teams

April 2, 2022
Queensland Country Life
Campdraft for a Cure to SynGAP1

March 21, 2022
The Camphill School Newsletter – Reflections
A Diagnosis

March 3, 2022
Rare Disease UK
Our SYNGAP1 story – Our Kimberley

January 11, 2022
National Council on Severe Autism
Autism and the Crisis in Crisis Care

October 1, 2021
Dallas Doing Good
Cannonball for the SynGAP1 Cure

September 28, 2021
Invitae – Health Decoded
Naya’s story: Now we can move forward

October 27, 2020
Disorder Rare Disease Films
Foundations of Rare – SYNGAP1

January 1, 2020
The Sulston Project
The Graglia Family – SynGAP