Board of Trustees
A SYNGAP1 father with a finance background, Andrew Schillaci brings unique experience in strategic brand partnerships and digital advocacy to the Board of Trustees. With a B.S. in Business and Economics from Lehigh University, Andrew transitioned from a finance track into the luxury wellness sector, where he currently serves as the Fitness Program Coordinator for Casa Cipriani in New York City. In this role, he spearheads brand activations and events with global entities such as Samsung and New Balance.
Andrew’s son, Matteo, was diagnosed with SYNGAP1– Related Disorders through the Guardian Study at New York-Presbyterian—a rare case of pre-symptomatic identification that has fueled Andrew’s passion for advocating. Leveraging his social media platform and a background in high-profile event operations, Andrew is dedicated to expanding CURE SYNGAP1’s visibility through modern, action-oriented digital support networks.
“As we wait for drug trials to advance, we are motivated to advocate for earlier testing, increased awareness, and the exploration of realistic preventive and supportive strategies that may help build alternative neural pathways before symptoms arise. We want to help shape a future in which families are informed sooner, supported more fully, and offered hope rooted in action and progress.”