Emily Barnes


Emily and her husband, Gordon, live in Danvers, MA with their two children, Chip (7) and Hadley (5). Hadley was diagnosed with SYNGAP1 in January of 2022 when she was four years old.  Emily is a graduate from the University of Arizona with a Bachelor of Science degree in Regional Development and has been working in Telecommunications for over 10 years.  She was very involved in her local mother’s group after the birth of both of her children and has close ties in the community where she and her family live.  She is incredibly grateful to be a part of the SynGAP Research Fund organization and has welcomed the support. She is eager to give back and contribute to finding therapies for SYNGAP1.

Email: emily@curesyngap1.org