Mike Graglia, MBA, MA

Managing Director

Here is a longer bio as well as images for head shots.

Rare Disease Media with Mike

Profile

Global Genes Profile Rare Leader: Mike Graglia, Managing Director, Syngap Research Fund.

Mike’s article in Newsweek: ‘Our Son Has a Rare Genetic Disorder, Life Is Risky for Us’

Mike’s Nomination to the Rare Champions of Hope.

Rare Parents Tackling Rare Diseases a profile of SRF and Ashley & Mike’s work in IPM on December 23, 2022

Mike’s Podcast

More Podcasts

Episode 41 – Time is Brain: SYNGAP Research Fund with Mike Graglia.
Episode 94 – The 12 Commandments with Nasha & Mike.
Episode 211 – The Juggle is Real

August 31, 2021 – Building the Connections with the SYNGAP Research Fund

September 1, 2021 – Dawn Blessing & Mike Graglia on the Speed of Change

November 1, 2021 – Mike interviewed by Mathew Passy of Causepods about SYNGAP10.

May 3, 2022 – Onno & Lyndsey interview Mike in the Rarebase Remarks Podcast.

June 3, 2022 – David Hirsch, founder of SFN interviews Mike about fatherhood and SRF.

December 30, 2022 – Kira Dineen of DNA Today interviews Mike & Elli Brimble for a conversation about SYNGAP1-related non-syndromic intellectual disability.

External Interviews & Panels

Thank you to the Epilepsy Foundation of America for convening this exceptional panel of Men in the Rare Epilepsies.

Global Genes 2021 Panel: Developing a Dynamic Plan for Impactful Advocacy and Storytelling

Thank you Ira for featuring SRF on Progress, Potential, and Possibilities.

Thank you to Billy for this interview and 10% off link. Syngap.Fund/Billy.

CBD

July 2021 article in Americans for Safe Access Newsletter regarding CBD.

Lacking guidance from doctors, parents lead the charge in treating children with CBD by Isabella Jibilian, December 20, 2018

Email: mike@curesyngap1.org
Twitter: https://twitter.com/jmgraglia
LinkedIn: https://www.linkedin.com/in/graglia/