Victoria Arteaga, MBA

Latin America Director

Victoria Arteaga, MBA, is the Latin America Director of the Syngap Research Fund (SRF). SRF is a non-profit organization whose mission is to improve the quality of life of SYNGAP1 patients through the research and development of treatments, therapies and support systems.

Victoria’s journey with SRF started shortly after her daughter Amelia was diagnosed with a rare genetic disorder caused by a variant of the SYNGAP1 gene in 2018. As an SRF board member since 2020, Victoria has advocated for families in the US and Latin America to promote knowledge, collaboration, legal representation, and more accurate diagnoses for SYNGAP1 patients.

In addition to her work with SRF, Victoria co-founded the Hispanic Society for Rare Diseases. In this position, she advocates to raise awareness of rare diseases and improve access to resources for this underrepresented community. Previously, she worked as an international purchasing manager, developing products and negotiating with suppliers for leading companies in Colombia and Latin America.

Originally from Colombia, Victoria earned a bachelor’s degree in International Business, Major in Political Studies and Geopolitics from EAFIT University in Colombia, and an MBA from Florida Atlantic University in Boca Ratón FL.

Victoria’s interview on SYNGAP1 Stories