Lauren Perry

Operations Manager

Lauren Perry is Operations Manager at Syngap Research Fund. Her son Will was diagnosed with SYNGAP1 in 2016 at the age of 6 after a long journey of trying to understand why he was not developing normally and experiencing such an array of symptoms. She spent countless hours at doctor’s appointments, therapy offices and school meetings for him. When Will was diagnosed with SYNGAP1 through whole exome sequencing, Lauren met a whole new community of people and it felt as though she finally had the anchor she was searching for with the Syngap community. Lauren is a Colorado native and loves exploring mountain towns & looking at unique art work; sitting by a river and walking on trails. She loves laughing and talking with her children, visiting with her extended family, watching movies and listening to music. Lauren believes in SRF, it’s leadership, mission and vision.

Read Will’s Warrior Story here.
Listen to Lauren on SYNGAP1 Stories Podcast here.
Email: lauren@cureSYNGAP1.org