Leesa Ewing


Leesa is mum to two daughters, one of whom was diagnosed with SYNGAP1 in September 2020. Leesa is the Commercial Director for a Health and Social Care Data Analytics company in the UK and is a passionate advocate of making patient health records readily available to researchers, in the search for better treatment options and the advancement of cures for rare diseases such as SYNGAP1. Leesa believes firmly that we can improve outcomes for patients, reduce health inequalities and address unmet needs through the application of data science, AI and machine learning to health and social care data, and to this end is a big supporter of the Ciitizen platform.

Email: leesa@curesyngap1.org