Original host of SYNGAP1-Stories Podcast
Ashley is a mother of two boys, Liam and Nathan- Syngapian. Located in Oxford, MS, she is using her professional experience to bring awareness and fundraising capabilities to CURE SYNGAP1.
Ashley says “My son Nathan was diagnosed with SYNGAP1-Related Disorders in December of 2020 at age 3.5 after an EEG identified epileptic activity. He has been developmentally delayed since he was six months old. I’ve been a staunch advocate for Nathan his entire life, knowing that something just wasn’t right. Now that we have a diagnosis, I will be an even harder working advocate for him and all the other SYNGAP1 families until we have a clinical trial for therapeutic treatment.”
Read Nathan’s Warrior Story here.
Hear Ashley talk about her family’s SYNGAP1 journey on Episode 1 of SYNGAP1 Stories
Email: afrye@cureSYNGAP1.org
LinkedIn: https://www.linkedin.com/in/ashley-frye-62095582/