CURE SYNGAP1 Volunteer
NaBrina is mom to twin girls and thrills every single time she hears “Mom” said or shouted or whined! Ember Sarae, 4 minutes older than her twin Camden, capitalizes on the deep love her neurotypical sister has for her…routinely using it to her advantage.
Ember Sarae was diagnosed with SYNGAP1-Related Disorders in 2019 at the age of 9. With the diagnosis came the answers to SO MANY questions as Ember Sarae presents with the majority of the associated neurological issues.
“Life with Ember Sarae is a remarkable joy-filled journey. To pull a reference from the movie Wonder – ‘Ember Sarae is the Sun. Me and Camden and her Dad are planets orbiting the sun.’ And, that is okay with us.”
Professionally, NaBrina has spent her entire career in the healthcare industry, specifically the continuing medical education accreditation space. NaBrina has decades of experience in accreditation, grant writing and data analytics related to educational impact.
Email: nabrina@cureSYNGAP1.org