Rebecca Kohlhepp

Critical Operations

Rebecca Kohlhepp has been an advocate within the Syngap community since 2011 when her daughter was diagnosed, beginning the first Syngap Family Support Group.  Rebecca served as a board member for another US Syngap Organization for close to three years with a focus on Patient Support and Engagement.  Rebecca has recently joined the Syngap Research Fund as Treasurer and is also serving as a regional Patient Ambassador.  Rebecca is an active supporter of Syngap Global Network believing that the greatest impact will be realized through global collaboration.