SYNGAP Paddle Slap IS a Thing!

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On May 20th, 2023, Ashley Frye and her family hosted the first annual SYNGAP Paddle Slap Pickleball Tournament and Crawfish Boil. This event raised money for SRF and awareness of SYNGAP1, a rare disease that afflicts 1,215 globally, including their son, Nathan. (Don’t miss him jamming with the band in the video near the end of this post!)

Twelve teams participated in four divisions at Oxford Activity Center. Our winners were Mark Holley and Nikki White; Nora Capwell and Ruth Lewis; Chris Gann and David Gardecki; and James White and Mike Robinson. Everyone enjoyed a wonderful morning of fun competition! The winners were awarded handmade wooden paddle plaques made by local artist and neighbor of the Frye family, Cecil Bowers.

The after party was a kid-friendly Crawfish Boil graciously hosted by The Farmstead. Local favorite band Rocket 88 entertained the guests while parents ate, drank, and socialized. Children of all ages bounced on castles provided by Southaven’s Blue Line Inflatables, had their faces painted by Fairy and Frogs Face Painting, and enjoyed hula hooping and running around the beautiful Farmstead property! Also on site were two pickleball courts, where guests played and had free lessons from North Mississippi’s Pickleball Ambassador, Worth DuPerier!

Prior to the Tournament, Pickleball players around the country participated in a Dink-A-Thon: a pickleball-inspired pseudo walk-a-thon to raise money for SRF!

People from all over northern Mississippi attended the event and many local businesses were generous sponsors! The total amount raised for SynGAP Research Fund was over $20,000! The Frye Family was thrilled to bring more awareness of SYNGAP1 to their community and money to fund more research for a cure! Ashley intends to host a second annual event in the spring of 2024 – follow @curesyngap1 everywhere to keep informed!

Nathan (right) was featured on ABC/24, Memphis
Ashley tells her family’s SYNGAP1 story in Episode #001 of SYNGAP1 Stories